.Our Roller Coaster.

I.T.P. is a roller coaster, I had been told. Now I am realizing just how tightly we are strapped to that roller coaster, without a distinct end in sight. I want to get off. I am not strong enough for this ride, but Christ in me is.

Today Cadi had blood work again. Her platelets are now at 25k. That is 5k higher than last week! We are rejoicing over every single platelet, even though her Hematologist considers anything short of a 10k change to be "no change". We are taking it as good news, and we will test again next week. The goal for a "normal" platelet level is between 150k and 450k.

I am researching a gluten intolerance and I.T.P., and I have found a ton of information on that. Several articles claim there is a link between the two, although few regular doctors will acknowledge it. We are currently discussing and praying over putting Cadi (and our whole family, as that is the only way I can see doing it) on a gluten free diet. I would much rather do that than have Cadi on massive doses of steroids.

Cadi has been having some tummy troubles and extreme fatigue. She also is experiencing leg pain. The hematologist was uncertain as to why she is still so, so tired. She told us that we need to be extra vigilant in keeping Cadi away from people and helping her to stay healthy right now. So we will try - this coming off of two days spent with my family celebrating Christmas. (We like to stretch this season out!)


Cadi with her cousin.

I am sorry for these medical posts. I am assuming if this becomes a permanent part of our life, than these posts will stop. But for now we are still hopeful that this is temporary, and we covet your prayer.

And for some comic relief, because I certainly need a bit these days - my Scotty and his cousin caught in the act of stealing candy from Grandma's candy dish!



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.Today's Count.

Cadi platelets have dropped again. Last Tuesday she was at 27k, and today she is at 20k. That was not the news we were praying for, and honestly not at all what I was expecting. I am remembering that God is in control, that He is good, that He is loving, and that this is all part of His perfect plan. It doesn't make this easy, but easier.

We continue to wait and see. The Hematologist stated that her IVIG treatment was not effective. There is little else to do at this point. We have to continue to monitor her very carefully and really watch for membrane bleeding and bleeding in her urine/stools. If that happens then they will start her on oral steroids. Cadi's next blood draw is next Tuesday. I know that even an acute case can last for six months, but we were so hoping and praying for this to be over.

Trusting God.

Her spirits are up. She is such a joy, and I am not just saying that. She is teaching me so much. Cadi continues to be very, very tired. We are assuming that is still the mono, but despite it all her smiles and laughter continue to fill our home.



If you are new here, you can catch up on Cadi's story here.


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